Community prototype
Experiences, organized by cohort.
A Reddit-style forum model for patient and caregiver stories, with verification before thread launch and moderation before public posting.
Community purpose
Separate experience from advice.
A good post explains what a family heard, prepared, found confusing, and wishes it had asked earlier.
Verification model
Reports are not stored.
Reports are checked only to verify cohort context, then deleted. Documents are never shown publicly.
Launch state
Needs moderation before public launch.
Public forum launch needs backend deployment, moderators, reporting, and privacy review.
Quick cohort paths
Find the experience lane you need.
NRAS after PD-1 failure
Tunlametinib, MEK/PD-1 questions, TIL, and trial-search experiences.
Immunotherapy
PD-1, nivo/ipi, Opdualag, side-effect conversations, and monitoring questions.
TIL therapy
Referral, center logistics, timing, and what families wish they had prepared.
BRAF + MEK
BRAF V600 targeted-therapy experiences and sequencing questions.
KIT-directed
KIT report interpretation, trial search, and subtype-specific questions.
Trial search
Search terms, registry links, site contact lessons, and timing questions.
Experiences with tunlametinib / HL-085 plus nivolumab after PD-1 failure
A cohort-style thread for families to describe what happened, what they asked, and what they wish they had known. Not a recommendation thread.
Early signalWhat should families ask after PD-1 / PD-L1 failure in NRAS melanoma?
A place to collect questions for oncology teams after checkpoint therapy stops working.
Early signalTrial search terms that helped you find better conversations
Share search phrases, registry links, and questions that made trial conversations clearer.
Lived experience onlyExperiences with nivolumab plus ipilimumab in melanoma
A cohort-style thread for families to describe questions, side effects discussed, and what changed during care.
Lived experience onlyExperiences with nivolumab plus relatlimab / Opdualag
A cohort thread for families trying to understand PD-1 plus LAG-3 immunotherapy conversations, timing, side effects discussed, and what changed during care.
Lived experience onlyExperiences with PD-1 monotherapy in melanoma
A cohort thread for nivolumab or pembrolizumab experiences, questions, monitoring, and what changed if treatment stopped working.
Lived experience onlyTIL therapy / lifileucel questions and experiences
A lived-experience and question thread for families learning about TIL therapy logistics after prior systemic treatment.
Lived experience onlyBRAF + MEK targeted therapy experiences
A cohort thread for BRAF V600 melanoma targeted therapy experiences and questions about sequencing with immunotherapy.
Lived experience onlyKIT-altered melanoma targeted therapy questions
A thread for KIT report interpretation questions, trial searches, and care-team conversations.