Start a cohort thread

Verified stories only.

Cohort threads can be powerful because families can compare questions, side effects discussed, access barriers, and what they wish they had asked earlier. To protect the forum from misinformation, each new patient/caregiver experience thread requires a credible doctor report before it can publish.

1Draft story

Write experience, region, cohort, and preparation questions, not treatment instructions.

2Select report

Select a redacted doctor report only to check cohort context.

3Verify, then delete

The file is not kept; only verification outcome and moderation state remain.

Verification flow

Draft the cohort thread, submit a redacted doctor report for review, publish only after verification, then delete the report.

1. Document check

Verify the cohort only

The report is used only to check that cancer type, mutation, and treatment cohort match the thread.

2. No storage

Delete after review

Before public launch, the server must process the file temporarily and never keep the report file.

3. Lived experience

No treatment instructions

Threads are for family experience and preparation questions. Treatment instructions are not published.

Draft allowedReport requiredHuman reviewDelete report

device-local modeno report storagepending review by default

Step 1

Define the cohort clearly

Thread title

Drug cohort

Care region

Treatment line

Prior therapies

Approximate duration

Why it stopped or changed

Step 2

Experience summary

Step 3

Doctor report selection: not stored

The file contents are not read or stored in this prototype.

I redacted names, birth dates, contact details, medical record numbers, and other identifiers before selecting the file.I understand the report is only for verification and should be deleted after review.This thread is lived experience only and does not tell another person what to choose, stop, combine, or dose.

Doctor report required, then deleted.

Patient/caregiver cohort threads can be drafted, but cannot publish until a credible doctor report is reviewed. The report is used only to verify that the story belongs in the claimed cohort, not to prove that a treatment works. The report should not be stored after verification; only the verification outcome is kept.

Accepted report types

oncology visit summary
pathology report
genomic or biomarker report
trial enrollment or consult summary
hospital discharge or treatment summary

Redact before submitting

full name
date of birth
address
phone number
email
medical record number
insurance number
barcode or QR code
doctor signature if not needed for verification