Forum / Melanoma
Melanoma
People facing melanoma — patients and the people who love them.
Experiences with tunlametinib / HL-085 plus nivolumab after PD-1 failure
A cohort-style thread for families to describe what happened, what they asked, and what they wish they had known. Not a recommendation thread.
Early signalWhat should families ask after PD-1 / PD-L1 failure in NRAS melanoma?
A place to collect questions for oncology teams after checkpoint therapy stops working.
Early signalTrial search terms that helped you find better conversations
Share search phrases, registry links, and questions that made trial conversations clearer.
Lived experience onlyExperiences with nivolumab plus ipilimumab in melanoma
A cohort-style thread for families to describe questions, side effects discussed, and what changed during care.
Lived experience onlyExperiences with nivolumab plus relatlimab / Opdualag
A cohort thread for families trying to understand PD-1 plus LAG-3 immunotherapy conversations, timing, side effects discussed, and what changed during care.
Lived experience onlyExperiences with PD-1 monotherapy in melanoma
A cohort thread for nivolumab or pembrolizumab experiences, questions, monitoring, and what changed if treatment stopped working.
Lived experience onlyTIL therapy / lifileucel questions and experiences
A lived-experience and question thread for families learning about TIL therapy logistics after prior systemic treatment.
Lived experience onlyBRAF + MEK targeted therapy experiences
A cohort thread for BRAF V600 melanoma targeted therapy experiences and questions about sequencing with immunotherapy.
Lived experience onlyKIT-altered melanoma targeted therapy questions
A thread for KIT report interpretation questions, trial searches, and care-team conversations.